Ways I Talk to Loved Ones About My Condition
Telling friends and family about your diagnosis can be extremely intimidating, overwhelming, and nerve-racking ...
Erica Lupinacci was diagnosed with systemic lupus erythematosus in 2009. She is the co-founder of Suffering the Silence, a 501(c)(3) nonprofit dedicated to leveraging the power of art, media, and storytelling to raise awareness and break the stigma surrounding chronic illnesses and disability. Lupinacci has spoken about life with chronic illness for the Yale School of Nursing, Weill Cornell Medical College, Awesomeness TV, The Mighty, and more. She is an actor and producer living in Los Angeles and most recently co-created & produced Trust Me, I’m Sick, a short docuseries about life with chronic illness. Learn more about her work on her website.
Telling friends and family about your diagnosis can be extremely intimidating, overwhelming, and nerve-racking ...
It can feel daunting to date and navigate being in a relationship when living with a chronic illness. We all know it’s hard to date in general ...
Managing and keeping track of all of your symptoms, medications, and doctors can be extremely overwhelming ...
Because of my lupus, I experience photosensitivity. I have to be extremely careful in the sun, or I can feel very sick very fast ...
I don’t think you can understand fatigue until you’ve experienced it yourself. Many people think it’s just feeling tired, needing to sleep, or spending the day on the couch ...
I’ve been living with lupus for over 13 years now. Here are a few things that I’ve found that help make life a little easier, reduce pain, or give relief ...